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Alisha's story: Making a dream into reality

Born at The Rosie at just 24 weeks, Alisha is now 16 years old and passionate about the new Cambridge ChildrenÎÚÑ»´«Ã½ Hospital and making it a reality.

In this film she describes some of the challenges she faces in hospital, and her wishes for the new hospital to improve the experience for her and others.

Link: https://www.youtube.com/watch?v=rAMNHF6FMqk

Video transcript

00:00:00:01 - 00:00:02:00

Hi, I'm Alisha I'm 16.

00:00:02:00 - 00:00:05:26

I'm a member of the Cambridge Children's Hospital Press Pack, and I have

00:00:05:26 - 00:00:10:07

a number of health conditions and a number of learning disabilities.

00:00:10:07 - 00:00:11:13

I have dyspraxia.

00:00:11:13 - 00:00:14:20

I have sensory processing disorder

00:00:14:24 - 00:00:16:06

and I also have mild hearing loss in both ears.

00:00:16:06 - 00:00:21:03

And the challenges I face at hospital are quite stark in terms of

00:00:21:13 - 00:00:24:02

just especially when like, I’m entering A&E for example

00:00:25:22 - 00:00:27:27

and you're really sort of in that crisis moment.

00:00:28:22 - 00:00:31:16

So for my dyspraxia I'd generally need

00:00:32:08 - 00:00:34:14

the lights be dimmed quite low

00:00:34:24 - 00:00:37:10

because in terms of like the overstimulation,

00:00:37:19 - 00:00:40:24

I do get very distressed, especially if I've just come indoors

00:00:41:00 - 00:00:43:03

and there's a lot of noise, a lot of bright lights

00:00:43:12 - 00:00:48:25

and I generally need to have the lights quite dim, for people just to talk a bit

00:00:48:25 - 00:00:53:01

quieter just so I get myself calm and I'm not in this state of sensory overload.

00:00:53:10 - 00:00:56:00

Well, I just find everything very sort of distressing.

00:00:56:12 - 00:00:59:08

So what I'd like the doctors and nurses to do

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is maybe move me into, like, a quieter room in advance.

00:01:02:22 - 00:01:07:03

So an isolation ward and isolation bay and dim the lights.

00:01:07:03 - 00:01:11:20

So I feel a bit less distressed and that I know what's going on around me

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and I'm bit less disorientated.

00:01:14:26 - 00:01:17:26

I'd also like,

00:01:17:26 - 00:01:21:16

for example, just in general access and getting around for the corridors

00:01:21:16 - 00:01:26:05

to be quite wide, because of my dyspraxia, I struggle with personal space

00:01:26:05 - 00:01:29:13

and just generally with moving around my balance isn't that great.

00:01:29:13 - 00:01:33:17

So I would need wide corridors, especially in the new children's hospital.

00:01:33:26 - 00:01:39:16

I can't really judge space that well and I can't really, I trip over things a lot.

00:01:39:27 - 00:01:44:22

And so it does make it quite hard to move around corridors and like around people.

00:01:44:22 - 00:01:48:26

And so wide corridors would be great for people

00:01:48:27 - 00:01:52:12

to just move around and to just have equal access.

00:01:52:12 - 00:01:57:15

So I don't trip over things and so that people have more room to move as well.

00:01:57:15 - 00:01:58:13

So yeah.

Alisha is a member of the Cambridge ChildrenÎÚÑ»´«Ã½ Press Pack, a group of creative young people telling their stories and playing a key role in connecting with the wider community.

ItÎÚÑ»´«Ã½ a dream to think that this new childrenÎÚÑ»´«Ã½ hospital, the first of its kind in the east of England, is finally coming to fruition. It will be the hospital that changes childrenÎÚÑ»´«Ã½ and families’ lives for the better and will be recognised all around the world for its innovation.

Alisha

.